Abstract
Introduction: In Aotearoa New Zealand, the responsibility for management of long Covid sits with primary care. GPs are often the first point of contact for these patients in a system that is already overburdened. Globally, patient experiences of accessing support for long Covid are varied. To date, the perspectives of New Zealanders living with the condition, on how best to support their care, have not been sought.
Aim: The aim of this study is to explore what a long Covid service should offer from the perspectives of those living with the condition. Methods Participants were recruited via the New Zealand long haulers Facebook group and individual interviews and discussions were conducted using Zoom. These were semi-structured with a few loosely structured questions to encourage discussion. Data were analysed using Braun and Clarke's thematic analysis.
Results: Eighteen participants were recruited. Four themes were identified in the data: practical guidance to support the health care journey; training and collaboration between health professionals; personalised care; and opportunity for health system change.
Discussion: Overall, participants appeared to want interdisciplinary knowledge sharing; collaborative services with clear lines of communication and a person-centred approach to care. Many of these proposed suggestions for a long Covid clinic align with the Ministry of Health recommendations. However, to date, there is no addition support from Government to support these long Covid service recommendations.