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The Glass Witness​: Visual and Tactile Engagements with Online Medical Crowdfunding
Journal article   Open access   Peer reviewed

The Glass Witness​: Visual and Tactile Engagements with Online Medical Crowdfunding

Medicine Anthropology Theory, Vol.11(3), pp.1-17
18/10/2024
Handle:
https://hdl.handle.net/10523/43293

Abstract

Crowdfunding Compassion Visual Ethnography Social Media Photography
Donation-based crowdfunding platforms invite people to tell stories of unmet health needs in a hybrid form—using both words and images—but research to date has not addressed the role of visual practice in this setting, in any detail. In this Photo Essay I present an art installation responding to this gap and informed by empirical data from a three-year study of medical crowdfunding in Aotearoa New Zealand. Through a feminist new materialist lens, and connecting to scholarship on visuality and the gaze, I used the medium of stained glass to evoke and connect the experiences of both campaigners and audiences. I briefly discuss the design process, alongside reflections on the role of graphic medical imagery in an assemblage of witnessing; on disability, shock, and the economic function of voyeurism; on non-normative bodies and subjectification through the gaze; on biases in audience recognition; and on paradoxes of intimacy and distance through digital technology. I highlight that both the content and the context of images have a role in shaping the ‘response-ability’ of networked publics to the suffering of distant others; in the case of medical crowdfunding, with significant consequences for healthcare access. 
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Published (Version of record) Open Access CC BY V4.0
url
https://doi.org/10.17157/mat.11.3.8142View
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