Abstract
Using Interpretive Descriptive methodology, this qualitative research explores caregivers’ experience of implementing sleep positioning systems for children with complex physical neurodisabilities. Current literature recommends the use of 24-hour postural management programmes (24-hr PMP) to support management of hip and body posture and improve comfort and quality of life for children with complex neurodisability. The focus of this study is the use of sleep positioning systems (SPS) as part of this 24hr postural management approach. There is limited research on the experiences of caregivers, with most studies exploring the impact and effectiveness of SPS on the child. Despite practice guidelines, clinical experience indicates variance in engagement and adherence to this approach. A better understanding of caregivers’ experiences of implementing SPS for children with complex neurodisability may help inform clinical practice to improve care for this population and support increased engagement and adherence to this approach. The objectives of this study were to: (1) review the literature on SPS for children with complex neurodisability; (2) develop an understanding of caregivers’ beliefs about the importance and relevance of SPS for children with complex neurodevelopmental disability; (3) develop an understanding of caregivers’ experience of implementing SPS for their children with complex neurodevelopmental disability.