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dc.contributor.advisorHenaghan, Mark
dc.contributor.authorAnderson, Sharon Claireen_NZ
dc.date.available2012-12-14T04:49:01Z
dc.date.copyright2008en_NZ
dc.identifier.citationAnderson, S. C. (2008). ‘Every man bears the whole stamp of the human condition’ : how does health information privacy law respond to the shared nature of genetic information? (Thesis, Master of Laws). University of Otago. Retrieved from http://hdl.handle.net/10523/3329en
dc.identifier.urihttp://hdl.handle.net/10523/3329
dc.description"22 December 2008". University of Otago department: Lawen_NZ
dc.description.abstractThis thesis examines the tensions that arise between the rights and interests of individuals and their genetic relatives as a result of the familial nature of genetic information. The first tension exists between an individual's interest in maintaining privacy and confidentiality in relation to his or her genetic information, and a relative's interests in being informed of his or her potential risk of developing a condition that he or she was otherwise unaware of (that is, the right to know). The second tension exits between an individual's interest in sharing his or her genetic information with relatives, and his or her relatives' interest in remaining ignorant as to their genetic status (that is, the right not to know). In examining these tensions, this thesis examines whether the rights and interests of both individuals and their genetic relatives are adequately recognised and protected under New Zealand's existing health information privacy law. In doing so, it explores the scientific nature of genetic information, potential legal and ethical approaches to such information, and how existing law "fits" the familial nature of genetic information. It then examines approaches taken overseas in relation to the competing interests at stake and, against that backdrop, assesses the Privacy Commissioner's proposal for reform. Finally it recommends a course of action for amending New Zealand's health information privacy law, proposing to dispel the tensions identified above.
dc.format.mimetypeapplication/pdf
dc.language.isoenen_NZ
dc.publisherUniversity of Otagoen_NZ
dc.rightsAll items in OUR Archive are provided for private study and research purposes and are protected by copyright with all rights reserved unless otherwise indicated.en_NZ
dc.title"Every man bears the whole stamp of the human condition" : how does health information privacy law respond to the shared nature of genetic information?en_NZ
dc.title.alternativePrivacy of genetic informationen_NZ
dc.typeThesisen_NZ
thesis.degree.disciplineLawen_NZ
thesis.degree.nameMaster of Lawsen_NZ
thesis.degree.grantorUniversity of Otagoen_NZ
thesis.degree.levelMastersen_NZ
otago.interloanyesen_NZ
otago.openaccessOpen
dc.identifier.voyager1699055en_NZ
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