Show simple item record

dc.contributor.advisorBurrell, Beverley
dc.contributor.authorKeer-Keer, Trudy
dc.date.available2013-04-25T21:54:00Z
dc.date.copyright2013
dc.identifier.citationKeer-Keer, T. (2013). The lived experience of adults with myasthenia gravis: a phenomenological study (Thesis, Master of Health Sciences). University of Otago. Retrieved from http://hdl.handle.net/10523/3932en
dc.identifier.urihttp://hdl.handle.net/10523/3932
dc.description.abstractMyasthenia gravis (MG) is a disorder of the neuromuscular junction (NMJ) that causes fatigue and fluctuating muscle weakness. The physiology of this disease is well understood and there are numerous medically focused articles that outline historical data, randomized controlled trials of treatment options and unusual case studies. There is limited nursing literature about MG; most nurse-led research focuses on fatigue. No published research examines the life experiences of people with MG. The aim of this study was to examine and understand the lived experiences of adults with MG. An interpretive phenomenological approach has been used that applies the research methodology of van Manen (1990). Seven people living with MG were interviewed and their experiences of the disease recorded. Questions were broadly worded about various topics related to MG, that included diagnosis, symptoms, treatments and coping strategies, and were guided by individual experiences. Thematic analysis revealed that MG affects every aspect of a person’s ‘lifeworld’: their sense of time, body, space and their relationships with others. The findings of this study highlight three main themes embedded in the data that a person with MG experiences: living with uncertainty, living with weakness and living with change. These experiences have been interpreted and discussed to gain a deep understanding of the meaning of the disease. This study raises awareness of MG for nurses and other health professionals. It provides a unique view of the disease and explores the meaning of MG, from a perspective where a paucity of such literature exists.
dc.format.mimetypeapplication/pdf
dc.language.isoen
dc.publisherUniversity of Otago
dc.rightsAll items in OUR Archive are provided for private study and research purposes and are protected by copyright with all rights reserved unless otherwise indicated.
dc.subjectlived
dc.subjectexperince
dc.subjectmyasthenia
dc.subjectgravis
dc.titleThe lived experience of adults with myasthenia gravis: a phenomenological study
dc.typeThesis
dc.date.updated2013-04-25T04:47:04Z
dc.language.rfc3066en
thesis.degree.disciplineCentre for Postgraduate Nursing Studies
thesis.degree.nameMaster of Health Sciences
thesis.degree.grantorUniversity of Otago
thesis.degree.levelMasters
otago.openaccessOpen
 Find in your library

Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record