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dc.contributor.advisorFitzgerald, Ruth
dc.contributor.authorClift, Kristin
dc.date.available2013-04-28T21:03:54Z
dc.date.copyright2013
dc.identifier.citationClift, K. (2013). Glimpses of Eternity: Sampled Mormon Understandings of Disability, Genetic Testing, and Reproductive Choice in New Zealand (Thesis, Master of Arts). University of Otago. Retrieved from http://hdl.handle.net/10523/3935en
dc.identifier.urihttp://hdl.handle.net/10523/3935
dc.description.abstractThis research explores the narratives of seventeen members of the Church of Jesus Christ of Latter-day Saints (LDS) in Southern New Zealand as they explain the meaning of disability and prenatal genetic testing, and its ethical and spiritual significance within their lives. Qualitative interviews were conducted with participants who were careworkers, parents of children with disabilities, and people with disabilities. This thesis analyses these narratives of life with the experience of one or several impairments, and the LDS doctrine of the spirit’s journey explained against Frank’s (1995) outline of illness and disability narratives. The narratives related by the participants reveal a spiritual model of disability, which is then compared to Beatson’s (2004) models of disability. The faith-based approach to viewing these issues, which the LDS participants describe, reveals a unique disability cosmology. For example, most participants believed that a spirit is autonomous and chooses in the pre-mortal existence to live out life with a disability. Additionally, LDS doctrine teaches that in the resurrection, all bodies will be made whole. Thus, disability is only a temporary condition in the eternal scheme, and this eternal timeframe through which the participants viewed disability is a strong point of contrast with most contemporary models of disability. Furthermore, many participants rejected prenatal genetic testing in their own family life because of their spiritual understanding of disability. However, when speaking to the wider social and regulatory environment surrounding genetic testing, participants expressed a range of ideals displaying varying degrees of opinions from extremely averse to hesitantly supportive of people’s rights to engage in prenatal genetic testing.
dc.format.mimetypeapplication/pdf
dc.language.isoen
dc.publisherUniversity of Otago
dc.rightsAll items in OUR Archive are provided for private study and research purposes and are protected by copyright with all rights reserved unless otherwise indicated.
dc.subjectdisability
dc.subjectdisability
dc.subjectNew Zealand
dc.subjectGenetic testing
dc.subjectReproductive choice
dc.subjectprenatal testing
dc.subjectMormons
dc.subjectChurch of Jesus Christ of Latter-day Saints
dc.subjectLDS
dc.subjectspirituality
dc.subjectimpairment
dc.subjectmodels of disability
dc.subjectamniocentesis
dc.subjectantenatal screening
dc.subjectDown syndrome
dc.subjectspirit journey
dc.subjectgenetics
dc.subjectnarrative
dc.subjectdiagnostic testing
dc.subjectreligion
dc.subjectpreimplantation genetic diagnosis
dc.subjectabortion
dc.subjecttermination
dc.subjectfaith
dc.subjectreproductive technology
dc.subjectdeaf
dc.subjectanthropology
dc.subjectethnography
dc.subjectstigma
dc.titleGlimpses of Eternity: Sampled Mormon Understandings of Disability, Genetic Testing, and Reproductive Choice in New Zealand
dc.typeThesis
dc.date.updated2013-04-26T23:46:39Z
dc.language.rfc3066en
thesis.degree.disciplineDepartment of Anthropology and Archaeology
thesis.degree.nameMaster of Arts
thesis.degree.grantorUniversity of Otago
thesis.degree.levelMasters
otago.openaccessOpen
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