The Health of Children and Young People with Chronic Conditions and Disabilities in Canterbury and the West Coast (2010)

Dell, Rebecca; Simpson, Jean; Reddington, Anne; Craig, Elizabeth; Wicken, Andrew; Adams, Judith; Oben, Glenda; Jack, Susan

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The Health of Children and Young People with Chronic Conditions and Disabilities in Canterbury and the West Coast (2010)

Craig, Elizabeth; Reddington, Anne; Adams, Judith; Dell, Rebecca; Jack, Susan; Oben, Glenda; Wicken, Andrew; Simpson, Jean

Cite this item: Craig, E., Reddington, A., Adams, J., Dell, R., Jack, S., Oben, G., … Simpson, J. (2010). The Health of Children and Young People with Chronic Conditions and Disabilities in Canterbury and the West Coast (2010) (Health of Children and Young People with Chronic Conditions and Disabilities). New Zealand Child and Youth Epidemiology Service. Retrieved from http://hdl.handle.net/10523/6485

Permanent link to OUR Archive version: http://hdl.handle.net/10523/6485

Date: 2010-11

Publisher: New Zealand Child and Youth Epidemiology Service

Series: Health of Children and Young People with Chronic Conditions and Disabilities; District Health Board

Keywords: Congenital heart disease; Congenital anomalies; Antenatal and neonatal screening; Down syndrome; Cystic Fibrosis; Diabetes; Cerebral palsy; Autism spectrum disorder; Cancer; Epilepsy; Disability support services; Child Poverty; Gross Domestic Product; Hospital Admissions; Injuries; Infant mortality; Neural tube defects; Obesity

Research Type: Commissioned Report for External Body

Languages: English

Abstract:

This report reviews a range of routinely collected data on children and young people in the DHB, with a view to identifying the numbers of children and young people with chronic conditions and disabilities accessing health services within the region. In addition, given a trend towards deinstitutionalisation and a greater emphasis on community care, this year‟s in-depth topics consider common areas of unmet need for families caring for children and young people with chronic conditions and disabilities, as well as the impact health and disability support services may have on their wellbeing.

This report provides an overview of secondary health service utilisation for children and young people with chronic conditions and disabilities in the DHB. While the data presented is at times imperfect, and at best only provides a glimpse of the health needs of these children and young people, the current paucity of data should not preclude the DHB reviewing the disability support services available locally, with a view to considering whether any of the issues identified nationally are an issue within the region. Further, while high quality evidence (e.g. from randomised control trials) is lacking, there is nevertheless sufficient information to direct future initiatives towards the areas of greatest need, which potentially may include access to respite care, continuity and coordination between services, and the adequate resourcing of caregivers (both paid and informal) looking after children and young people with disabilities. Attention to ongoing quality improvement in these areas will ensure that over time, the health sector is better able to respond to the needs of these children and young people, who are amongst some of the most vulnerable in New Zealand.

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