Abstract
This report was produced as a result of a contract between the DHB and the Paediatric Society of New Zealand, on behalf of the New Zealand Child and Youth Epidemiology Service (NZCYES).
This report reviews a range of routinely collected data on children and young people in the DHB, with a view to identifying the numbers of children and young people with chronic conditions and disabilities accessing health services within the region. In addition, given a trend towards deinstitutionalisation and a greater emphasis on community care, this year's in-depth topics consider common areas of unmet need for families caring for children and young people with chronic conditions and disabilities, as well as the impact health and disability support services may have on their wellbeing.
This report provides an overview of secondary health service utilisation for children and young people with chronic conditions and disabilities in the DHB. While the data presented is at times imperfect, and at best only provides a glimpse of the health needs of these children and young people, the current paucity of data should not preclude the DHB reviewing the disability support services available locally, with a view to considering whether any of the issues identified nationally are an issue within the region. Further, while high quality evidence (e.g. from randomised control trials) is lacking, there is nevertheless sufficient information to direct future initiatives towards the areas of greatest need, which potentially may include access to respite care, continuity and coordination between services, and the adequate resourcing of caregivers (both paid and informal) looking after children and young people with disabilities. Attention to ongoing quality improvement in these areas will ensure that over time, the health sector is better able to respond to the needs of these children and young people, who are amongst some of the most vulnerable in New Zealand.